Parkinson’s…little hidden secret.

Living with Parkinson's Disease (PD) can be challenging, but finding moments of joy and connection with nature can greatly improve quality of life. During my neighborhood walk yesterday, I had a wonderful experience connecting with nature.I have decided to make a conscious effort to prioritize daily discoveries during my walks. By taking the time to appreciate the natural world around me without any distractions such as my phone or music, I have noticed the beauty of the cardinals singing loudly this year. Perhaps it is just me being more attuned to their sounds now. I was also mesmerized by the sight of baby hawks perched high above, eagerly waiting for their mother's return with dinner.Even in urban areas, nature has a way of manifesting itself if we are willing to look for it. By putting away our devices and being fully present in the moment, we can truly appreciate the wonders of the world around us. This intentional focus on nature can bring about moments of peace and joy, even in the midst of living with PD.

PD Report: Unexpected Onset of Dystonia

Yesterday, an otherwise peaceful day took a drastic turn as I experienced one of the most severe episodes of Dystonia. The symptoms manifested suddenly and intensely, encompassing severe pain, spasms, uncontrollable movements, cramps, and toe distortions. My attempts to manage the situation involved vocal outbursts, crying, walking, and floor writhing, highlighting the distressing nature of the episode. The symptoms persisted until around midnight, where they suddenly subsided without gradual reduction.

Upon reflection, the triggering factors for this acute episode were analyzed. While my routine remained unchanged, it was noted that an atypical lunch meeting, the meal consisted of beer and fish and chips, a departure from my usual dietary habits. Additionally, the prolonged illness of bronchitis over the past four weeks, combined with inadequate breakfast and hydration, indicated a lack of optimal self-management.

Scott. My social calendar coach and foodie coach.

The sudden cessation of symptoms raised questions as to the underlying cause. Learning from this distressing experience, the importance of maintaining a balanced routine, dietary choices, and self-care practices was reiterated. Acknowledging the impact of lifestyle factors on symptom exacerbation, it became evident that proactive management is crucial in mitigating the severity of Dystonia episodes.

Lessons Learned: Utilizing this episode as a learning opportunity, the significance of consistent self-care practices and adherence to a conducive routine was reaffirmed. Emphasizing the importance of personal responsibility in managing Parkinson's disease, the necessity of maintaining a holistic approach to health and well-being was underscored.

This incident serves as a reminder of the unpredictable nature of Dystonia and the proactive steps required to minimize its impact. By integrating these lessons into future management strategies, a proactive and informed approach towards Parkinson's disease can be cultivated.

Sheree . My friend and in the know coach.

DBS Report: Transformation and Empowerment.

Duration since DBS Surgery: 2 Years

Two years have passed since the transformative Deep Brain Stimulation (DBS) surgery, significantly enhancing the quality of life and effectively eliminating tremors. The impact of this procedure has been profound, leading to a remarkable improvement in health and well-being. The absence of tremors has contributed to a sense of normalcy and vitality, reflecting the positive outcomes of DBS on Parkinson's disease management.

Emphasizing the paramount importance of quality of life, the enduring benefits of the DBS procedure have been instrumental in fostering a sense of well-being and contentment. The ability to lead a fulfilling and active life free from the constraints of tremors underscores the transformative power of DBS in enhancing overall quality of life.

Dr. Lotia. Neurologist. AdventHealth and Abbott team. My health coach.

Reflecting on the journey post-DBS surgery, our role of individuals with Parkinson's disease (PD-ers)in owning and managing our condition becomes prominent. It is a collective responsibility for PD-ers to take charge of ourhealth, well-being, and treatment plan. By assuming an active role in self-management, PD-ers can optimize their outcomes, enhance their quality of life, and empower themselves in their health journey.

Words of Advice: As a guiding principle, it is crucial for PD-ers to embrace the concept of ownership and proactive management of their condition. By taking control of their health, making informed decisions, prioritizing self-care practices, and seeking support when needed, PD-ers can navigate the challenges of Parkinson's disease with resilience and determination. The journey towards optimal health and well-being begins with a mindset of ownership and empowerment, guiding PD-ers towards a path of stability and vitality.

In conclusion, the transformative impact of DBS surgery, coupled with a proactive approach to self-management, paves the way for a fulfilling and empowered life despite the challenges posed by Parkinson's disease. By prioritizing quality of life, taking ownership of one's health, and embracing a proactive mindset, individuals with PD can navigate their journey with resilience, optimism, and strength.

Family: My sister Linzi. My travel coach.

Remember that love and laughter are the truest currencies of life. Cherish your family, rely on your team, lean on your friends, and always have a loyal pup by your side. These are the pillars that will sustain you through all of life's ups and downs.I

My bodyguard, my running and hiking coach, my sleep coach, my nutritionalist, my speech coach and my comedy coach…..Kili (short for Kilimanjaro)

Dystonia is a neurological movement disorder that causes involuntary, sustained, or repetitive muscle contractions. These spasms can force the body into twisting, repetitive, and often painful postures or movements. It affects people of all ages and can involve a single muscle, a group of muscles, or the entire body.

• Primary: Believed to be the main neurological condition, often genetic.

• Secondary: Occurs as a symptom of another condition, such as Parkinson's disease, multiple sclerosis, or a brain injury.